DISCLOSURE RECALL

1. AUTHORHerz-D-A, Looman-J-E, Lewis-S-K.
INSTITUTIONDivision of Neurosurgery, Michigan State University, Grand Rapids. 
TITLEInformed consent: is it a myth? (see comments). 
SOURCENeurosurgery 1992 Mar, VOL: 30 (3), P: 453-8, ISSN: 0148-396X. CM Comment in: Neurosurgery 1992 Aug; 31(2):380-1. 
ABSTRACTThe issue of informed consent at it relates to neurosurgical professional malpractice liability and litigation has been of concern for 20 years or more. The problem persists, and the subject has been addressed by providing patient education with full disclosure regarding neurosurgical procedures. In the process of imparting informed consent, the authors studied the effectiveness of specific neurosurgical health care teaching. One hundred six persons undergoing anterior cervical fusion or lumbar laminectomy were instructed by a neurosurgeon and clinical nurse specialist with a master's degree in neurosurgery. Written testing was performed in each case immediately after a formal teaching session before surgery. Questions were simple and covered only four general topics: 1) diagnosis and surgical techniques; 2) operative risks; 3) postoperative care; and 4) goals and benefits relating to surgery. The mean score on testing immediate retention of information revealed a 43.5% overall performance rate. When patients were tested approximately 6 weeks later, the score dropped to 38.4%. This was statistically significant (chi 2, P less than 0.05). The authors encourage the concept of patient education. The data in the current study, however, suggest that the reasonable and prudent neurosurgeon making a concerted effort at patient education, with the assistance of a professional educator, cannot necessarily expect accurate patient or family recall or comprehension. Fulfillment of the doctrine of informed consent by neurosurgeons may very well be mythical. Author. 
2. AUTHORHekkenberg-R-J, Irish-J-C, Rotstein-L-E, Brown-D-H, Gullane-P-J. 
INSTITUTIONDepartment of Otolaryngology, Toronto Hospital, University of Toronto, Ontario. 
TITLEInformed consent in head and neck surgery: how much do patients actually remember? 
SOURCEJ-Otolaryngol 1997 Jun, VOL: 26 (3), P: 155-9, ISSN: 0381-6605. 
ABSTRACTThis study was conducted to evaluate the effectiveness ofinformed consent in head and neck surgery by testing patient recall of potential complications from thyroidectomy, parathyroidectomy, and parotidectomy. DESIGN: A prospective design was used. SETTING: The setting was an academic tertiary care centre. METHODS: Fifty-four patients undergoing thyroidectomy, parathyroidectomy, or parotidectomy were consented by verbal contact by the operating surgeon with a specific preoperative checklist of complication and side effects. One week to 2 months after consent, the patients were surveyed for recall of potential complications. MAIN OUTCOME MEASURES: Rate of recall was related to various parameters including patient age, sex, level of education, occupation, and length of time from the consent interview to the recall interview. RESULTS: The overall recall rate for all procedures was 48%. Those patients who recalled over 50% of the complications were younger (p = .04) and better educated (p = .04). The gender of the patients did not appear to influence recall success (p = 1.00), even when facial scar or paralysis was considered. CONCLUSION: A significant relationship exists between education level and patient age and the rate of patient recall of potential complications of surgery. Author. 
3. AUTHORYoshioka-H. 
INSTITUTIONDepartment of Orthopedic Surgery, Yodogawa Christian Hospital, Osaka, Japan. 
TITLE(Informed consent in orthopedic surgery). 
SOURCENippon-Seikeigeka-Gakkai-Zasshi 1993 Jan, VOL: 67 (1), P: 40-8, ISSN: 0021-5325. 
ABSTRACTTwenty-eight patients who had total joint replacement (TJR) and twenty-eight patients who sustained open reduction for fracture within or close to the joint were studied to determine their recall of the informed consent procedure. The questionnaire covered a postoperative time range of more than 5 months and less than 6 years (average: 2 years and 4 months). The patient's recall and the doctor's document of informed consent were scored 4 points for diagnosis and treatment, 1 point for prognosis, 3 points for benefits, 4 points for complications and 1 point for alternatives with a total of 13 points. In TJR, the average recall and document score were 8.6 points and 6.5 points respectively; and in fracture, 6.6 points and 4.9 points. Fifty-seven per cent of the patients with TJR recalled the risk of infection; and 54 per cent recalledthe problem of loosening. Twenty-nine per cent of the patients with fracture recalled the risk of infection, and 29 per cent the risk of nonunion. In TJR, the recall score was related to the patient's age and the document score. There was significant difference in document scores among doctors. As a result of this study, standard documents for informed consent in each operation have been compiled with the aid of a word-processor to improve the quality of informed consent. Author. 
4. AUTHORSaw-K-C, Wood-A-M, Murphy-K, Parry-J-R, Hartfall-W-G. 
INSTITUTIONDepartment of Urology, Ipswich Hospital, Suffolk, UK. 
TITLEInformed consent: an evaluation of patients' understanding and opinion (with respect to the operation of transurethral resection of prostate). 
SOURCEJ-R-Soc-Med 1994 Mar, VOL: 87 (3), P: 143-4, ISSN: 0141-0768. 
ABSTRACTThe ability of patients to understand and recall information given prior to obtaining written consent was assessed in 55 patients who were due to undergo the operation of transurethral resection of prostate. The patients were also asked their opinion on informed consent. Most patients knew the position of the prostate and the purpose of the operation. Some aspects of the postoperative management and complications were less well remembered. In particular, 18% of the patients could not remember the possibility of retrograde ejaculation despite efforts to emphasize this. Of the patients who returned their questionnaires, 41% did not mind what happened to them provided they were made better; 54% trusted their doctor to do the right thing and did not think detailed explanation was important; 62% felt that consent forms are to protect the doctor's right; still most patients felt that consent forms were necessary. Sub-groups comparison showed no relationship between patients' attitude and their ability to recall information. Author. 
5. AUTHORCassileth-B-R, Zupkis-R-V, Sutton-Smith-K, March-V. 
INSTITUTIONUniversity of Pennsylvania Cancer Center, Philadelphia. 
TITLEInformed consent -- why are its goals imperfectly realized? 
SOURCEN-Engl-J-Med 1980 Apr 17, VOL: 302 (16), P: 896-900, ISSN: 0028-4793. 
ABSTRACTWe explored reasons for the failure of patients to recall major portions of the information on consent forms and in oral explanations about consent. Within one day of signing consent forms for chemotherapy, radiation therapy, or surgery, 200 cancer patients completed a test of their recall of the material in the consent explanation and filled out a questionnaire regarding their opinions of its purpose, content, and implications. Only 60 per cent understood the purpose and nature of the procedure, and only 55 per cent correctly listed even one major risk or complication. We found that three factors were related to inadequate recall: education, medical status, and the care with which patients thought they had read their consent forms before signing. Only 40 per cent of the patients had read the form "carefully." Most believed that consent forms were meant to "protect the physician's rights." Although most thought that consent forms were necessary and comprehensible and that they contained worthwhile information, the legalistic connotations of the forms appeared to lead to cursory reading and inadequate recall. Author. 
6. AUTHORHutson-M-M, Blaha-J-D. 
INSTITUTIONSection of Arthritis Surgery, West Virginia University, Morgantown 26506. 
TITLEPatients' recall of preoperative instruction for informed consent for an operation (see comments). 
SOURCEJ-Bone-Joint-Surg (Am) 1991 Feb, VOL: 73 (2), P: 160-2, ISSN: 0021-9355. CM Comment in: J-Bone-Joint-Surg-(Am) 1991 Feb; 73(2):159. 
ABSTRACTThirty eight consecutive patients who were admitted to the hospital for total joint replacement were studied to determine their understanding of the elements of informed consent at the time when they signed the consent document before the operation and their recall of those elements six months after the operation. All patients received instruction from the same patient educator before the operation. Each patient was asked to respond verbally to a questionnaire about the preoperative instruction. If a question was not answered correctly, tutoring was given until the patient gave the correct response. The consent document was not presented for signature until the patient could answer all questions correctly. In an interview six months after the operation, thirty six of the thirty eight patients were asked the same questions that they had answered before the operation. The recall of risks and benefits six months after the operation was compared with the understanding of risks and benefits that had been demonstrated before the operation by both the verbal questioning and the signed consent document. At six months, the number of patients who recalled the risks ranged from nine (25 per cent) who remembered the risk of infection to only one who remembered the risk of damage to a nerve or artery. More patients recalled the potential benefits:eight (22 per cent) for relief of pain and improved function and five (16 per cent) for improved motion. Author. 

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